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I feel compelled to tell my story in an abbreviated fashion. I was diagnosed with type 1 in 1970. I was nine years old. As most of you have heard there wasn't at home bg testing or A1c's. I must have been constantly in dka without knowing it. My family didn't make a big deal about it. I rode my horse & bike, swam in rivers, etc. Basically I could do what I want. In my late 20's, while married I got pregnant by accident. My kidney's went from 100% function to 50% before I knew that I was pregnant. I went to the doctor because I was gaining so much weight quickly. It ends up that it was water retention from the kidneys. Fast forward to 1999 and my function reached 20%. That is the marker to get listed for a transplant. I'm in Southern California and UCLA medical center was doing simultaneous kidney/pancreas transplants. In January 2000 I was officially on the transplant list. Fortunately I never require dialysis. On July 30, 2000 I had my double organ transplant. It was a huge success. It felt incredible to be, "non-diabetic ". My kidney is still functioning perfectly. In January 2008 my pancreas had a rupture. Basically, it was a bowel obstruction at a point where the pancreas was connected to my small intestines. I was at deaths door. It's a very long and convoluted story. There were numerous attempts to save my pancreas, but it just didn't work out. I was in and out of the hospital for two years from bowel obstruction's from scar tissue. It also took me about two years to mourn the loss of my pancreas. I'm sure that all of you can understand how upsetting that would be. Yes, I was fortunate to experience eight years insulin free, but going back to diabetes was much harder the second time around. Before my transplant I wasn't on an insulin pump or CGM. I didn't count carbs, etc. Old school was just looking at a meal and knowing how much to take and it worked fairly well. Complications? My main other complication is severe sensory motor peripheral neuropathy. I'm used to it. I live a very active life with my husband who is still with me through all of this. Thank goodness for him.πŸ˜‡ I ride my bike almost every day and this summer have been swimming also. I do volunteer work. I guess my point is that we can go through quite a bit of crap and still stay strong. It doesn't mean we don't cry, I do. But, the will to be self sufficient has driven me to good health. I guess good health is all relevant. (Ha, ha, ha) If anyone has questions about transplants please private message me. I haven't had any questions, please private message me Below is a picture of my husband and I. I shared this to show you newbies that diabetes doesn't have to destroy you. Remember, I was diagnosed in 1970! Best wishes to everyone!
Living with type 1 diabetes since 1970. | Fountain Valley, CA








Nice to meet you all. I've had diabetes for 5 years now. I joined to meet other people like me as well as going through the same experiences as me. I am learning new things about my diabetes everyday. When I first diagnosed I used levemier and novolog pen injections. I then tried the MiniMed paradigm pump which was great until it was stolen while I was on the beach in Miami Fl. Someone took my belongings which had my pump attached while I was in the water. Since then I went back to the pen injections until I received a dexcom G5 device which was amazing to me learning more information about how my body reacts to carbs and insulin. Because I learned so much I decided to give the pump another try so I ordered one and now have the minimed 630g. Yesterday I was trained on the pump and guardian link and so far so good. I don't think the guardian link is as accurate as the dexcom but maybe it will start to work better overtime. I was very impressed with dexcom. (This is all my experiences and opinions). I am very thankful technology has got this far to the point I can have a conversation about a CGM. I am very excited about the new minimed that will be releasing very soon and I am in Line to get one of those devices. I was told that there has not been one reported severe low. That was from the mouth of a medtronics trainer. The device is not released officially but they have done a lot of testing and have people currently using the device. If you are interested you should look up the new pump which is a closed loop system. I had a scare last year which caused me to be so afraid of getting a low. I woke up in my living room and the paramedics were giving me attention and revived me (or maybe I revived myself) nevertheless very scary. That's my scoop hope to have some great convos with you all and look forward to sharing some of stories and supplies I have available. By the way I work in IT that's the deal with the computers and supplies in the background
Living with type 1 diabetes since 2012. | Sikeston, MO

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