where people touched by diabetes help each other.

Hey all...never really done anything like this..but I guess just reaching out and seeing what happens. I've been t1d for 25 years and I feel that really ever since I turned 18 I'm just tired of having it. I do the bare minimum, I've been almost trying to pretend I'm not diabetic I think in some weird way, tired of being sick or something. But I'm ready to really embrace it and try n get my health back. Wondering if anyone else has dealt with this and what helped trying to get involved in diabetes activities as well and be accountable

Submit
9 Answers
Living with type 1 diabetes since 2011.
Minesing, CAN
You are not alone. Every one of us experiences exhaustion and we all get lazy. But there are so many resources for us to connect, we don't have to feel alone anymore. If ever you need to talk, please feel free to shoot me a message

Living with type 1 diabetes since 1992.
Morgan Hill, CA
Thank you so much!

Living with type 1 diabetes since 1994.
Lancaster, NY
I think I'm still in the state you were in... I've had diabetes for 17 yrs... I can't get the hang of it... I feel like everything I try fails. I hate being low... ugh! So frustrating and seriously feels so hopeless. so I completely understand. I'm so glad to hear you've decided to live w it and just own up to it... I don't know why but for some reason I just can not :(

Living with type 1 diabetes since 1992.
Morgan Hill, CA
It's so hard. I'm trying first step was this site. Might try to get involved in local things. But man my problems are the highs I'm constantly 200+ lows are the worst tho I understand that especially when you have ZERO appetite it's when it dawns on u that u could literally die I usually muster up the courage to eat lol. Testing is just annoying so is counting carbs n changing my pump sets I just barely do what I have to but it's not good enough anymore

Living with type 1 diabetes since 2011.
Minesing, CAN
There's this site, but on twitter there's a huge online diabetic community (#doc, #dsma, #diabetes etc..) and Facebook has tons of groups. We are very welcoming, and we're always happy to help.

Living with type 1 diabetes since 2011.
Minesing, CAN
I know what you mean with the feeling that it's all too much trouble. My last a1c was 12. Because I wasn't testing, I was carb guessing, not counting, and I was missing most of my blouses. I stretched the use my sites to the point they would leak more insulin than deliver, it started through financial hardship, my student insurance plan would only cover $500 in test strips/year and I didn't have a job and couldn't really afford my 30% co-pay. But things changed in my life and I kept up the old "survival" habits I had developed. I'm doing better theses past 2 weeks, my wife is pregnant and I've made a decision to take care of myself. I've been testing every 2 hours (4 at night time) since march 22, I've adjusted my basals, I changed my infusion sets to the contact detach because I'm apparently allergic to teflon canulas.

Living with type 1 diabetes since 1992.
Morgan Hill, CA
Omg sounds all too familiar. I leave mine so long I like don't absorb the insulin anymore n have a big angry lump. So happy to hear your doing better and congratulations!!! The time my care n health was st it's best was when I was pregnant with my son but it was easy to fall back into bad habits being a busy single mom. The struggle is so real it's nice to know your not alone but even nicer to have support to do better. It dawned on me the other day that I. Literally me myself and I are just killing my self for no reason. There is so much technology now a days that we can all live happy healthy lives! It's a good feeling to know that it's not as much a death sentence as when I was first diagnosed before pumps n humalog

Living with type 1 diabetes since 2011.
Minesing, CAN
Those big angry lumps that ooze insulin when you finally change the set. So many of those. Actually the one I have in now needs to be changed like yesterday, so it's easy to fall off track. Changing it as soon as I get home,

Living with type 1 diabetes since 1997. supporting a sibling with type 1 diabetes since 1994.
Manheim, PA
You're definitely not alone !!! I just asked this same question to a member from one of the groups. I tend to go through "I DON'T CARE" stages on and off and I have absolutely no idea why or what is triggering it. I'm supposed to test 8x/daily and I've been testing 1-2 times max. And I have not had my CGM in over a month. And I cancelled my last 2 ENDO appointments. You're not alone dear. We all go through it and we have to work our way through it. You can definitely turn the tables around and take control of it. And if you fall down again... Pick yourself back up !!! The key is to never give up. And please know that I as well as many others here are available to talk whenever you feel like you're needing someone to talk to 💞💗💞

Submit