where people touched by diabetes help each other.

I feel compelled to tell my story in an abbreviated fashion. I was diagnosed with type 1 in ####. I was nine years old. As most of you have heard there wasn't at home bg testing or A1c's. I must have been constantly in dka without knowing it. My family didn't make a big deal about it. I rode my horse & bike, swam in rivers, etc. Basically I could do what I want. In my late 20's, while married I got pregnant by accident. My kidney's went from 100% function to 50% before I knew that I was pregnant. I went to the doctor because I was gaining so much weight quickly. It ends up that it was water retention from the kidneys. Fast forward to #### and my function reached 20%. That is the marker to get listed for a transplant. I'm in Southern California and UCLA medical center was doing simultaneous kidney/pancreas transplants. In January #### I was officially on the transplant list. Fortunately I never require dialysis. On July 30, #### I had my double organ transplant. It was a huge success. It felt incredible to be, "non-diabetic ". My kidney is still functioning perfectly. In January #### my pancreas had a rupture. Basically, it was a bowel obstruction at a point where the pancreas was connected to my small intestines. I was at deaths door. It's a very long and convoluted story. There were numerous attempts to save my pancreas, but it just didn't work out. I was in and out of the hospital for two years from bowel obstruction's from scar tissue. It also took me about two years to mourn the loss of my pancreas. I'm sure that all of you can understand how upsetting that would be. Yes, I was fortunate to experience eight years insulin free, but going back to diabetes was much harder the second time around. Before my transplant I wasn't on an insulin pump or CGM. I didn't count carbs, etc. Old school was just looking at a meal and knowing how much to take and it worked fairly well. Complications? My main other complication is severe sensory motor peripheral neuropathy. I'm used to it. I live a very active life with my husband who is still with me through all of this. Thank goodness for him.😇 I ride my bike almost every day and this summer have been swimming also. I do volunteer work. I guess my point is that we can go through quite a bit of crap and still stay strong. It doesn't mean we don't cry, I do. But, the will to be self sufficient has driven me to good health. I guess good health is all relevant. (Ha, ha, ha) If anyone has questions about transplants please private message me. I haven't had any questions, please private message me Below is a picture of my husband and I. I shared this to show you newbies that diabetes doesn't have to destroy you. Remember, I was diagnosed in ####! Best wishes to everyone!

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15 Answers
I'm a mom supporting a child with type 1 diabetes since 2016.
Largo, FL
Wow. That's crazy. I had no idea you could do a pancreas transplant.

Living with type 1 diabetes since 1970.
Fountain Valley, CA
Most of the time whole pancreases vs islet cells are done with a kidney. But, there are pancreas alone transplants done when some has severe complications. The immunosuppressant drugs are supposed to be bad for you, but my opinion is that diabetes can also be. Pick your poison? The bummer is that they attached my pancreas with a connector that linked and died. Usually it's connected directly to the small intestine. I have friends that are doing great with their kidney/.pancreas transplant. In the future the technology and information out there could strongly decrease kidney failur.

Living with type 1 diabetes since 1970.
Fountain Valley, CA
Failure. If I had been in good control when I got pregnant this MAY have never happened. I cope by forgetting my past and moving forward. Beating ourselves up is counterproductive. Live life with zest. Stressing out over things that don't matter doesn't serve a purpose. 😊🦋😜

I'm a mom supporting a child with type 1 diabetes since 2013. supporting a spouse with type 1 diabetes since 1983.
Dallas, TX
I love that you have such a positive and also a "it is what it is" attitude/thinking about all of the things you have been through. My husband has that very same mindset and I am happy that he has passed that way of handling "the daily grind", physically and mentally,on to our son as well. He always tells our son that he's never going to use it as a crutch or a way to feel sorry for himself. And whenever somebody here's the story of the family line of T1D's and their stories, on my husband side, they always respond with sympathy and pity, which I understand and use to do. The first thing my husband will say is don't feel sorry for me because I don't want to feel sorry for me. He just goes on about his business and tries to do the best that he can with what he's got. Thank you for sharing your story.

Living with type 1 diabetes since 2008.
Spring Hill, FL
This is absolutely amazing I'm 19 yrs old , married , and was diagnosed in #### I was perfectly controlled at the beginning but then I started letting myself go at the end of my high school year , I'm trying to get back on track to prepare myself for when I would like to get pregnant

I'm a dad supporting a child with type 1 diabetes since 2000.
Statesboro, GA
Thanks for sharing!

Living with type 1 diabetes since 1970.
Fountain Valley, CA
The great thing is that type 1 women are having successful pregnancies all the time now. It just takes planning. I belong to a local group of type 1's that have had it for 30 to almost 60 years. There are only a couple women with kids. But, when I was diagnosed in #### I didn't expect to live past 40. Primarily because I didn't take care of myself. Now I'm an active, happy 56 year old with a solid marriage. I'm going to post how I got back in control soon. 🦋

Living with type 2 diabetes since 2015.I'm a dad supporting a child with type 1 diabetes since 2003.
Dix Hills, NY
Wow****what a great story. I was 24 hours from dying in #### when my colon erupted. I'm fine now. I was diagnosed with T2D over 2 years ago. My son who just got married in France is T1 for 14 yrs. Both of us are using Afrezza for meal time insulin. I just got back my latest A1C and believe it or not it went down from 5.4 to 5.2. Just go onto YouTube and see all the success stories. Talk to your Dr. it's a game changer.

Living with type 1 diabetes since 1992.
Oviedo, FL
Here is a link to an unbiased Afrezza review:

Living with type 1 diabetes since 1992.
Oviedo, FL

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