where people touched by diabetes help each other.

I have cystic fibrosis related diabetes. I have had it for 6 years now. I can't get my A1c below 11... Not sure how to go about it?With my cystic fibrosis I need twice as many calories to keep weight

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15 Answers
Living with type 1 diabetes since 2003.
Chicago, IL
that sounds tough. wish I could help !

Escaló, ESP
did you try Insulin?

Living with type 1 diabetes since 2006.
Rudheath, GBR
I had the problem where I was doing football for my college, I had to eat more and then I got used to eating the same amount when I had stopped, so I upped my dosage of insulin

Living with type 1 diabetes since 1996.
Strongsville, OH
that sounds very challenging... do you see an endocrinologist regularily? they have monitoring systems that can watch blood sugat very closley... might be something to look into if you do not have something like that already.

Living with type 1 diabetes since 2009. supporting a parent with type 2 diabetes since 2015.
Westerville, OH
I have an insulin pump and dexcom CGM. they help but I already have an insulin ratio of 1:5. it's extremely difficult! and my cgm just reminds me of how horrible I'm doing! I see my doc for it every 3 months, and still not getting better

Living with type 1 diabetes since 2003.
Chicago, IL
sounds like you need new basal and bolus rates. maybe start from the beginning again and do the overnight tests etc.

Living with type 1 diabetes since 1996.
Strongsville, OH
with your a1c as high as it is.. i would almost assume your endo would want to see you more frequently to get a better control on this and be working more aggressivley?.. just a thought..

Living with type 1 diabetes since 2009. supporting a parent with type 2 diabetes since 2015.
Westerville, OH
I normally wake up at nights with lows. it's all day that it tends to be high! and they were seeing me once a month and downloading my pump and cgm to make adjustments, it dropped from 14 last month to 11 this month but it is normally 11

Living with type 1 diabetes since 1996.
Strongsville, OH
well thats good that i was able to come down from 14... but as far as battling highs all day.. that is definitely a struggle... what type of insulin are you on? they switched me from humalog to apidra for a faster acting insulin. it peaks quicker then humalog. i noticed a difference in my numbers.. all depends on what youre eating to make up for the calories you are in need of. have they ever talked about a dietician?

Living with type 1 diabetes since 2009. supporting a parent with type 2 diabetes since 2015.
Westerville, OH
I am currently on humalog. I used to use novalog, not much of a difference. and my doc hasn't talked about any other type of insulin. I worry about what my insurance would cover since I'm about to be 21 and it will be changing. and I have to eat a lot of fatty foods and that just means more carbs!

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